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Clonidine
Clonidine Last Thursday, Amy Wout, my Penntex nurse came by the facility to update my intrathecal pump. Dr. Rush ordered a double dosage of the newer medication clonidine. Amy filled that script by injecting both Baclofen (kept at the same dosage) and clonidine. The initial dosage of clonidine did slightly help my spasms but not Continue reading
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Goals for 2026
This is actually a repost. My jet pack has been disconnected, thus subscribers have not been alerted for my previous two posts. Please read my previous two blog posts regarding Transportation and my goals for 2026. Continue reading
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Goals for 2026
I have never been one for making New Year’s resolutions. But still, I did a little fact checking on the failure rate of people carrying out their New Year’s resolutions. What I found was quite humorous and sad. According to research at Baylor College of Medicine at the University of Delaware, 80%-90% of people who Continue reading
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The Travel Adventures of a Quadriplegic
I could just hop in my car and run errands or visit friends. Having a vehicle is freedom of movement. I could just take a scenic drive someplace or impulsively see a movie. This is something I took for granted as I’m sure most of you readers do also. This freedom of movement was upended Continue reading
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Itchy, bitchy, twitchy: classic signs baclofen withdrawals
I’ve been out of Mary Free Bed for a few weeks now. My condition hasn’t changed significantly. I still go through withdrawals while trying to wean off the oral Baclofen pills. In this post, I’ll share my experience and going through withdrawals with Baclofen and give everybody some updates. Another UTI I had my supra Continue reading
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dealing with clonus, spasms, and muscle tone
I discharged from Mary Free Bed on 11/12. It was supposed to be a simple surgery to replace the Baclofen pump. Instead of just an overnight stay it turned into a 2 1/2 week ordeal. On11/5, Dr. Vandenberg refilled the Baclofen pump with just Baclofen. Insurance will not cover the prialt at this time because Continue reading
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Life transitions for a quadriplegic
On Thursday, January 23, 2025, was my first volunteer assignment with Disability Advocates of Kent County. The program is called Absolutely Accessible Kent. The DAKC team provides accessibility reviews for organizations and workplaces. For this particular program, we are called “test pilots”. The pilots are volunteers that examine spaces and provide feedback on accessibility for Continue reading
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A Quadriplegic Plays Golf Again
Winter has arrived but that did not prevent me from starting to golf here in Michigan. It was golf through Xbox. I’ve never been a gaming enthusiast. Evan, a Recreational Therapist at Hope Network, doubled as my caddie. He helped me get set up with some adaptation. Evan connected a tennis ball so I could Continue reading
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Covid free. Finally!
I’ve been physically put through the grinder the last few weeks. First I had two strange of a UTI, which required two different medications, including an IV drip for five consecutive days. For good measure, I got the ‘vid officially 11/11. I had some delusions, congestion, fogginess in the brain, fatigue. The works. As of Continue reading
About Me
Hello and welcome to my blog. I am LMSW and spinal cord injury survivor. . Another.